Tired of Facebook or as we like to call it, Fakebook? Where everyone looks great, their kids are perfect and they are the June Cleavers of the twenty-first century? If so, welcome to Killing June Cleaver where we dispel the myths of the perfect life. Join the shit-storm of our lives. Parental guidance suggested and a glass of wine will help. We leave no age untouched from toddlers to teens to aging parents and workaholic husbands.
Monday, March 9, 2020
Saturday, February 29, 2020
This Was Tough to Write...
I haven't posted a blog in a long time! It's been a busy year for both Kathleen and me as we navigate this new territory in our writing life. Last July I published my first novel, Shoes on the Stairs, centered around a mother's love for her family even after her death. This story was a labor of love as I wrote about my own insecurities as a mother, questioning if how I am raising my children will ultimately screw them up later in their life.
Reality shows abound with adults who, because of their troubled childhood, have resorted to self-destruction in the way of drugs, alcohol, obesity, hoarding or prison time. How does someone get to be 600+ pounds? How does someone live in piles and piles of filth? Why does someone turn to drugs or alcohol or commit a crime that puts them behind bars? More than likely, it's due to a trauma in their life, especially during a time when they were most vulnerable. Not all trauma that leads to these behaviors happens during childhood, but that is when humans are the most vulnerable and the least capable of processing harmful events.
As parents, it's our responsibility to protect our children. I would take a bullet for my children without any hesitation; I would do anything to ensure their safety. But what if there is an unknown threat you never see? It's right in front of your face, but it's disguised as someone you trust, someone you would never consider to be a threat to your child. What then? And when you find out what that friend did to your child for years, there is nothing you can do to change the damage that has been done. Your child, the one you protected with your life, is now swimming in a tumultuous sea, her head bobbing under the water, disappearing for long, agonizing moments before coming to the surface, sucking in a breath and going under again. Each day I pray that she keeps fighting the white-tipped swells, that she continues to return to the top, that she continues to swim no matter how tired she is, no matter how hard the fight is. "We are fighters," I tell her. "Things will get better, the waters will calm."
But what cuts me to the core is that I can't save her--she must save herself. No matter how hard I try to get close to her, to pull her out of the water, my arms can't reach. All I can do is sit in my tiny boat and watch in complete terror, afraid that if I move one muscle I will create a wave that will push her under for good. The fear and helplessness are isolating, and at times, unbearable. "God, take me, save her."
I know more than I ever wanted to about the effects of trauma, about sexual abuse, in children (by children), about 5150s, suicide hotlines, CPS (Child Protective Services), PHPs (Partial Hospitalization Programs), IOPs (Intensive Outpatient Program), antidepressants, mood stabilizers, Neurofeedback, individual, family and group therapy. My days are spent driving my daughter from one therapy to the next, picking her up from school because she can't stop crying, getting an IEP established because she's unable to function well in school, hiring a tutor to get her back on track and trying like hell to find something, someone, someplace, that makes her happy--even if it's only for an hour or two.
So, while parents can be the ones to screw up their children, so can those who appear to be harmless, in fact, those are the ones you must keep your eye on. Don't let your guard down, don't assume that all your child's friendships are safe, even those of the same sex. Set rules, keep your child close, keep their door open. Never assume, just because you know someone or their parents, that the child is not capable of doing something unhealthy or uninvited to your child. Protect your child.
With social media dictating and directing our children today, I fear who they will become as adults. There is too much pressure to be "liked" or accepted and while they think this allows them to be unique individuals, it's actually taking away their ability to think freely because to be "liked" is to conform to what everyone wants to see. As parents, we are losing our grasp on our children and our children are quickly losing their grasp on childhood. Sex and drugs, a time when more kids are questioning their sexuality than ever before at younger and younger ages, and a depleting sense of self-worth are plaguing our children. More children are taking antidepressants, seeing therapists and killing themselves than probably any other time in history. This is what we are up against as parents and there is no margin for error, there is no time to "drop the ball" or shrug our shoulders. Instead, be the parent your child needs you to be, be vigilant, ask questions, and love them fiercely. Remember, we only get one chance to raise them, and we only get a short time to protect them.
Monday, February 3, 2020
What Is Social Anxiety?
Social anxiety is... Fear in anticipation of social events
Social anxiety is not.... Being a party pooper or a buzz kill
Social anxiety is..... Exhaustion, irritability, or headaches and a need for down time following social events.
Social anxiety is not..... A lack of desire for connection or a hatred for interaction with others
Social anxiety is.... Feeling overwhelmed in large groups and crowded areas. Feeling claustrophobic, unable to breathe, or panicked. Feeling an overwhelming need to escape.
Social anxiety is not.... Simple nervousness
Social anxiety is.... Automatically and involuntarily cringing when the phone rings due to feeling unprepared and fear of saying something awkward and filling awkward silences
Social anxiety is not..... Blowing you off
Social anxiety is.... Sometimes needing to cancel social events or leave early
Social anxiety is not..... Flakiness
Social anxiety is...... Not knowing how to start or end conversations
Social anxiety is not.... A lack of intelligence
Social anxiety is.... Over thinking everything you said, if you said the right things, and what people were thinking
Social anxiety is not.... Craziness (whatever that is!)
Social anxiety is.... Low tolerance for small talk but often a preference for deep conversation with a trusted person
Social anxiety is not.... Being stuck up or standoffish
Social anxiety is.... Insecurity making friends
Social anxiety is not.... A lack of desire for friendship (often those who take a little longer to get to know make the most loyal frriends
Social anxiety is.... Needing to set boundaries and limits to preserve energy and sanity
Social anxiety is not.... Antisocial or rude behavior
Social anxiety is.... A type of anxiety disorder
Social anxiety is not.... All in the sufferer's head/simple nervousness
Note: This post is based on my own personal experience with social anxiety. It is not meant to represent all those who deal with social anxiety or generalized anxiety. Each person is different and not everyone with social anxiety will relate to each point. However, if you can relate to any of the above, you are not alone or weird. Please feel free to add your own experiences in the comments. Be gentle with the friends who don't always show up or stay long, or those friends who prefer one on one interactions or small groups to big parties.
Social anxiety is not.... Being a party pooper or a buzz kill
Social anxiety is..... Exhaustion, irritability, or headaches and a need for down time following social events.
Social anxiety is not..... A lack of desire for connection or a hatred for interaction with others
Social anxiety is.... Feeling overwhelmed in large groups and crowded areas. Feeling claustrophobic, unable to breathe, or panicked. Feeling an overwhelming need to escape.
Social anxiety is not.... Simple nervousness
Social anxiety is.... Automatically and involuntarily cringing when the phone rings due to feeling unprepared and fear of saying something awkward and filling awkward silences
Social anxiety is not..... Blowing you off
Social anxiety is.... Sometimes needing to cancel social events or leave early
Social anxiety is not..... Flakiness
Social anxiety is...... Not knowing how to start or end conversations
Social anxiety is not.... A lack of intelligence
Social anxiety is.... Over thinking everything you said, if you said the right things, and what people were thinking
Social anxiety is not.... Craziness (whatever that is!)
Social anxiety is.... Low tolerance for small talk but often a preference for deep conversation with a trusted person
Social anxiety is not.... Being stuck up or standoffish
Social anxiety is.... Insecurity making friends
Social anxiety is not.... A lack of desire for friendship (often those who take a little longer to get to know make the most loyal frriends
Social anxiety is.... Needing to set boundaries and limits to preserve energy and sanity
Social anxiety is not.... Antisocial or rude behavior
Social anxiety is.... A type of anxiety disorder
Social anxiety is not.... All in the sufferer's head/simple nervousness
Note: This post is based on my own personal experience with social anxiety. It is not meant to represent all those who deal with social anxiety or generalized anxiety. Each person is different and not everyone with social anxiety will relate to each point. However, if you can relate to any of the above, you are not alone or weird. Please feel free to add your own experiences in the comments. Be gentle with the friends who don't always show up or stay long, or those friends who prefer one on one interactions or small groups to big parties.
Thursday, January 30, 2020
To the Parents of the Classmates Who Didn't Give Up On My Son This School Year
Dear Parents,
In the daily grind of schedules and snow pants, I’ve neglected to acknowledge my appreciation for you and your family – namely, your sweet, amazing child.
Let’s start with you. Before I first dropped my child at your house for a playdate I informed you that my son lives with moderate autism. I hate having this conversation, not because I have any shame surrounding his diagnosis, but because it sounds like I’m giving a warning, when really I’m just highlighting what my son needs to be set up for success with peers, and potential pitfalls I can predict. But if I’m being honest, we didn’t really know each other. We were moms with kids the same age in the same class. We’ve come a long way when it comes to stigma, but the reality is, not everyone is comfortable with special needs. You seemed like a mom I could really get along with, but how could I be sure you wouldn’t have reservations about hosting a child with unique needs, with whom you were unfamiliar? If you had reservations, you didn’t show it. On the contrary, you put my mind at ease, assuring me you’d let me know if any snafus popped up.
I appreciate your openness, acceptance. Parenting a child with unique needs is often isolating. It can feel a lot like living on an island. Finding someone willing to reach across the water is invaluable. There’s someone else I appreciate. Here’s to your child.
You see, my son transitioned (transition – a four letter word to many on the spectrum) from a special-needs preschool class to a mainstream kindergarten. His IEP team proved amazing, but we were nervous about how he’d relate to his peers. We had the same fears most parents face. Would he make a friend? Would he be lonely at recess? Would he get bullied? I remember relating to Julia Roberts’s character in the movie, Wonder, when she watches he son, Auggie walk into the school building and whispers, “Please God make the kids be nice to him”.
Our concerns were amplified by E’s social anxiety and difficulty reading social cues and communicating verbally. Selective mutism was suggested, as E spoke to teachers and aides but tended to freeze with peers. This looks like flat affect, and a frozen, staring face. Often, he won’t respond when a peer says “hi” or asks to play. When he sees peers playing together, he wanders around them waiting for them to invite him to play. Despite role play, he struggles to verbalize his desire to be included. My biggest prayer wasn’t about reading or math. I prayed that God would send him a real friend to make his school days more comfortable.
God gave more than I asked. He gave E. your child. When we ask E. who he played with at recess, instead of hanging his head and saying “no one” like he did in the beginning, he mentions your child’s name with a grin. When E. struggles to transition back into the school week after a weekend or longer break, we remind him that he’ll reunite with your child. That helps. Your child gives him something to look forward to, someone to comfort him when he gets homesick.
Your child was okay with taking the lead, which my child needs. Your child not only asked mine to play, but they were undeterred when E. didn’t respond to their invitations and greetings. Instead of (understandably) running off and finding a more receptive playmate your child persisted, somehow recognizing that my son’s companionship was worth the extra effort. Your child kept asking, kept greeting, and kept inviting.
I remember the ice cream social during the fall of first grade. E. clung to me, overwhelmed by the excited voices bouncing off the cement walls of the cafeteria and the lines of people. To be honest, I was a bit overwhelmed myself, though I didn’t show it. I saw you and your child. We all exchanged greetings. E. was overloaded and didn’t say “hi” to your child, even with prompting. He remained glued to me even when your kids asked him to come outside and play on the playground. E. tugged on me to go with him, but I was in line for his coveted ice cream ticket. Your kids ran outside.
Moments later, they were back. I watched in grateful amazement, as your child amended, “E., do you want to play with us?” to “Come on, E., let’s go play.” I watched your children gently but firmly take my child’s hand and lead him outside. By the time I made it outside the kids were chasing each other and rolling down the hill. E. was sweaty and laughing. He’d forgotten about me, and more amazingly, he’d forgotten about his ice cream melting in my hand. I’ve never been so happy to have sticky vanilla running down my wrist. That night I got to watch my son run and play with friends - no social worker, aide, or parent prompting him – just being a kid. This was possible because of my son’s bravery to venture away from his comfort zone, but the opportunity was offered, no, insisted upon by your children. We all chatted while our kids frolicked, and I got to be just one of the moms. I went home from that ice cream social with high spirits.
Your child is so much more than a playmate. Your child is the friend who encourages my son to raise his hand in class. Your child has made him comfortable asking for sensory and movement breaks, referring to these accommodations as cool privileges. Your child often accompanies mine on these breaks, and while I’m sure they enjoy the break from class too, they engage my child without asking why he’s given these breaks.
When your child invites mine for playdates, he hesitates, not because he’s not excited to play, but because leaving his familiar environment and predictable afternoon brings its own challenges. Often he asks that your child come to our house instead. He always has fun at your house once he’s there, but your child is just as happy to roll with the punches and play at our home. On one of these playdates, we were having some work done in our basement, and our internet cable was accidentally cut. I was informed it would be two days before it could be repaired. In general, dusty, noisy home repairs and a cut internet cable equals first world inconvenience. For someone on the spectrum, an unexpected change on top of a noisy disruption in their safe environment is a potential recipe for a meltdown. This particular week, my son’s fixation is building a boat in Minecraft with his brother. Per our therapist’s recommendation, he gets this at the end of his day. When you’re looking forward to something and it doesn’t happen, you probably feel disappointed and maybe frustrated. To my child, unexpected disappointment can feel like the end of the world.
But it can look like a bratty temper tantrum to the outside observer. I get it, I do. I’m telling you this because on this day your child witnesses a full-blown screaming, crying, throwing the X-Box remote at the (already cracked) television screen, and falling on the floor. I won’t add a full dissertation on the difference between a tantrum and a meltdown but suffice it to say no seven-year-old CHOOSES to have a meltdown in front of a peer – especially a classmate. But here we were. While attempting to deescalate, I glanced over at your child lingering at the threshold of the family room with a pensive frown on their little face.
In that moment, I froze. I didn’t want your child to be scared, but I didn’t want to embarrass my child further by attempting to explain. Before I could decide how to handle the situation, your child came into the room, walked up to my child, and without missing a beat, said, “E., I’m sorry you don’t get to play Minecraft today. That’s sad.”
My mouth hung open. Without prompting and in the sweetest voice possible, your six-year-old did what I’ve personally witnessed countless educated adults fail to do in these situations – validate feelings and show empathy. Your child didn’t see a kid “too old to be acting like that” being a brat. Your child saw a friend and fellow human upset, and showed understanding without judging whether or not his reaction was too much. My child didn’t respond immediately, but ultimately your child coaxed him out of his fixation and into another activity.
I’m rambling now, but this event made me think. As an advocate for my child, I feel the need to learn every single fact about autism, therapy, and how to diffuse meltdowns while also raising awareness to other people. I believe those stares and passive aggressive comments (always from adults) in public sprout from simple ignorance rather than cruelty. After all, autism is an invisible disability. However, I doubt your child knows or understands that my child is on the spectrum. They probably haven’t stayed up until 1:00 A.M. reading articles and scouring online support groups. They don’t have any letters after their name (yet). In this moment, none of that was needed. Good old-fashioned human empathy and validation did the trick. What would life be like if we all responded that way? Maybe the opposite of ignorance isn’t knowledge but compassion.
In my long-winded way, I’m circling back to you, parent. Your child learned empathy and compassion from somewhere. They learned inclusion and kindness. They learned that sometimes the most valuable friends are those you have to work a little harder to get to know. Maybe you’ve sat your child down and talked about differences. Maybe in the beginning of the school year you reminded your child to be kind to classmates and look for the kid keeping to themselves at recess. Either way, I can safely assume your child has learned the most from watching you.
We don’t know each other well, dear parents, but we know our kids watch us even when we think they don’t, and they’re always absorbing like little sponges. When you approached the new, socially anxious mom hiding in plain sight in the farthest corner of the classroom, they were watching. When you offered a kind word to someone having a bad day, they were listening. When you responded with compassion instead of snapping back at the cranky barista, they noticed. So, thank you for modeling acceptance, understanding, and perseverance. Our kids are only in first grade. Chances are they’ll lose touch over the years. But your child will always be the reason my child didn’t play alone in first grade. Your child will always be the reason my child didn’t have to feel different. Chances are my child will remember these friendships and sense of belonging well into adulthood. I’m not saying this to be cheesy. As an adult, I can name every bully, but I can also describe in detail every classmate who showed kindness.
Through their persistence, your child gained an invaluable friend. E. is the most loyal person you’ll meet. E. is a fun, silly, imaginative, and complaint playmate. Your child took the time to learn this. Thank you for sharing your child’s pure heart with our family.
With love,
A Fellow First-Grade Mom
Monday, December 2, 2019
If You're Struggling This Holiday Season...
Tis
the season to be jolly. It’s the most wonderful time of the year. Have a cup of
cheer. It’s December and every time we step in a store, turn on the radio, or
walk down the street we are reminded of the season of Christmas. Let’s be real;
we’ve been inundated with these messages before the Jack- O’ lanterns rotted.
Whether you love Christmas or hate it, these messages are inescapable.
I’m not here to go all grinch and ruin your Christmas spirit. However, if you’re not feeling the joy but in fact feel the exact opposite, this post is for you. Maybe you’re struggling with depression and it’s triggered or exacerbated by this season. Maybe you’re dealing with grief and the twinkling lights and scent of poinsettias are painful reminders of loss. Perhaps the stress of the holidays is fueling joy-stifling anxiety. You’re not alone.
Recently, my church did a sermon series tackling tough stuff, including, grief, addiction, depression, and anxiety. I was volunteering at the resource table set outside the worship center. A middle-aged man came up and shyly scanned the pamphlets. He shared that he was currently dealing with depression and was feeling much worse as the winter and Christmas season commenced. I was glad this man felt safe enough to reach out. He was far from the only one. It got me thinking. Is the bombardment of cheer, joy, presents, and decorations sending “should” messages to the many people struggling during the holiday season? You should be feeling joyful and jolly. You should be drinking eggnog and smiling by the Christmas tree. You should love every moment.
I’m not suggesting channeling Scrooge and banning all things holiday. But, here’s the thing: if you’re not feeling it you are not alone. This year, I turned on Christmas music while the turkey was still digesting. I smiled while my kids reacquainted themselves with favorite Christmas decorations and books. But the main reason I’m embracing the holidays this year is because last year I really, really couldn’t.
I live with major depressive disorder, generalized anxiety disorder, and attention deficit disorder. I anticipate a spike in anxiety as I try to do all the things (the pressure to do all the things is a whole other post) but last year it was the depression that really defeated me. People say things like “don’t let it steal your joy”. That’s like telling someone, “don’t let the rain fall”. There’s no “letting” involved.
My depression tends to have a reverse seasonal pattern - it worsens in the summer. I also have “double depression” which means I manage chronic dysthymia as well as episodic major depressive episodes that can last weeks, months, or even years. During the summer of 2017 my mood took a serious nosedive. Depression is frustrating. I have coping skills and check in with myself and my doctor regularly. Despite this, sometimes it comes without warning and with no identifiable triggers. In this case, I think it was creeping in and the dismantling of an important friendship among other stressors tipped the scales. I suppose the reason doesn’t matter. With my brain chemistry, it’s easy to slide into a depressive episode. It’s much more complicated to crawl out of it.
I tried self-care, medication changes, writing, sleep hygiene, you name it. The depression deepened and persisted. By November of 2018, I was at an all time low, and not for any particular reason. Depression doesn’t need a reason. Fun fact: depression (or anxiety, grief, etc.) doesn’t care what season it is or what kind of music is playing on the radio. I was a year and a half into a major depressive episode. I was tired. I wondered if I’d ever emerge this time. I’m sharing this because last year at this time the festive reminders felt like mockery.
I don’t think anyone really knew where my head was. After all, I’m a mom. I always loved Christmas. Growing up, it was my favorite time a year. I love replicating the idyllic Christmases of my childhood for my own children. My dad loved Christmas. He passed on December 10th, 2006, and every year we keep his memory alive and laugh as we adorn his favorite decorations. I plastered a smile on my face while the pressure in my chest expanded. That was the hardest part; the pretending. I smiled when we picked out an evergreen from the lot across the street. I took pictures while coercing my ten-year-old to stand by Santa. I dragged myself out of bed and to Christmas parties. When the sign-up sheet for my youngest son’s kindergarten class party landed in my inbox, I volunteered. Every night I read Twas the Night Before Christmas, Polar Express, and Charlie Brown Christmas.
But when I was alone I dropped the act. The rare times I got in my car without kids in tow I punched the audio button as soon as I turned on the engine, turning Christmas music to Linkin Park. The Christmas music I normally looked forward to sounded almost eerie. The words “jolly” and “joy” were like big red fingers pointing at me. The lights only illuminated the gloom. In the shower, when I had the energy to take one, I grieved. Depression had stolen my joy and I was helpless to get it back.
Aside from anxiety, depression’s best friend is guilt. I berated myself for being immersed in darkness during the most wonderful time of the year. I isolated, fearing I’d fail to hide my bleak mood and it might rub off on my friends and family. Smiling was painful. Singing was painful. Visiting and talking and pretending was exhausting. I wanted to snap out of it. I know it doesn’t work that way, but the guilt was oppressive. Not only that, I was missing the season. I was sad about being sad.
Notice I’m saying “was”. This year, I can’t say I’m on top of the world, but I’m miles above where I was last year at this time. Thanks to support, a dedicated psychiatrist and counselor, and maybe some random luck thrown in, I’m in a good place. Some pretty cool things have happened since last year. I’m in the process of working with a publisher toward my book release date. Those dark times propelled me through my novel, which deals with mental health. I’ve watched my kids grow and change. I’ve learned about myself and my relationship dynamics. That’s why I’m embracing Christmas this year; I couldn’t last year. Not didn’t but couldn’t. That’s one massage I want to leave you with. Last year at this time I didn’t think the joy would ever return. I was ready to give up on ever feeling it again. I was wrong. I’m not going to sit here and tell you “things will get better” or “this too shall pass”. I’m not going to patronize you with platitudes, because I don’t know who you are or where you are or what your situation is. All I know is life is not static, at least not forever. It keeps moving, and if you keep moving with it, it has the chance to change. Give yourself the chance. That’s the other thing about depression. It not only helps me with my writing, but it helps me enjoy the times it’s absent. Because of depression, I can appreciate the mundane, I’d venture to say more than the average person.
The other message I want to leave you with might be the one you need to hear the most if you’re in a dark place. It’s okay. It’s okay if you’re depressed this holiday season. It’s okay if you’re grieving. It’s okay if you have the urge to shatter every single Christmas light and the thought of eggnog makes your nauseous. It’s okay if you’re dragging yourself through the motions of shopping, wrapping, cookie exchanging, and ornament hanging. It’s okay if you’re not. It’s okay if your skipping the holidays altogether. Listen, if this is you I truly wish I could come hug you and roundhouse kick your depression, grief, anxiety, etc. in the face. I know it sucks. It sucks worse when the joy you’re surrounded by contradicts your inner climate. It’s not your fault. If I can’t remove your struggles maybe I can help put a dent in your guilt. You’re not alone. I hope you feel safe to reach out for help. I hope the more we talk about this stuff the more people will feel comfortable. That’s why I started writing about my mental health. I’m just one person, but I want to be part of the conversation. If you’re not ready, that’s okay too. But just know that you’re not required to bathe in eggnog and feel all the joys of the season. You’re not alone. I know, I know, that’s a cliché, but based on myself, conversations with friends, and the number of people who approached that resource table, I can promise you it’s true.
Be kind to yourself. Be really gentle. It’s okay if this isn’t the most wonderful time of the year for you. Whatever your feeling inside is legitimate. If all you can do is put one foot in front of the other, if you can’t put one foot in front of the other and all you can do is roll over in bed, that’s enough for now. You’re enough, during this season and always.
I’m not here to go all grinch and ruin your Christmas spirit. However, if you’re not feeling the joy but in fact feel the exact opposite, this post is for you. Maybe you’re struggling with depression and it’s triggered or exacerbated by this season. Maybe you’re dealing with grief and the twinkling lights and scent of poinsettias are painful reminders of loss. Perhaps the stress of the holidays is fueling joy-stifling anxiety. You’re not alone.
Recently, my church did a sermon series tackling tough stuff, including, grief, addiction, depression, and anxiety. I was volunteering at the resource table set outside the worship center. A middle-aged man came up and shyly scanned the pamphlets. He shared that he was currently dealing with depression and was feeling much worse as the winter and Christmas season commenced. I was glad this man felt safe enough to reach out. He was far from the only one. It got me thinking. Is the bombardment of cheer, joy, presents, and decorations sending “should” messages to the many people struggling during the holiday season? You should be feeling joyful and jolly. You should be drinking eggnog and smiling by the Christmas tree. You should love every moment.
I’m not suggesting channeling Scrooge and banning all things holiday. But, here’s the thing: if you’re not feeling it you are not alone. This year, I turned on Christmas music while the turkey was still digesting. I smiled while my kids reacquainted themselves with favorite Christmas decorations and books. But the main reason I’m embracing the holidays this year is because last year I really, really couldn’t.
I live with major depressive disorder, generalized anxiety disorder, and attention deficit disorder. I anticipate a spike in anxiety as I try to do all the things (the pressure to do all the things is a whole other post) but last year it was the depression that really defeated me. People say things like “don’t let it steal your joy”. That’s like telling someone, “don’t let the rain fall”. There’s no “letting” involved.
My depression tends to have a reverse seasonal pattern - it worsens in the summer. I also have “double depression” which means I manage chronic dysthymia as well as episodic major depressive episodes that can last weeks, months, or even years. During the summer of 2017 my mood took a serious nosedive. Depression is frustrating. I have coping skills and check in with myself and my doctor regularly. Despite this, sometimes it comes without warning and with no identifiable triggers. In this case, I think it was creeping in and the dismantling of an important friendship among other stressors tipped the scales. I suppose the reason doesn’t matter. With my brain chemistry, it’s easy to slide into a depressive episode. It’s much more complicated to crawl out of it.
I tried self-care, medication changes, writing, sleep hygiene, you name it. The depression deepened and persisted. By November of 2018, I was at an all time low, and not for any particular reason. Depression doesn’t need a reason. Fun fact: depression (or anxiety, grief, etc.) doesn’t care what season it is or what kind of music is playing on the radio. I was a year and a half into a major depressive episode. I was tired. I wondered if I’d ever emerge this time. I’m sharing this because last year at this time the festive reminders felt like mockery.
I don’t think anyone really knew where my head was. After all, I’m a mom. I always loved Christmas. Growing up, it was my favorite time a year. I love replicating the idyllic Christmases of my childhood for my own children. My dad loved Christmas. He passed on December 10th, 2006, and every year we keep his memory alive and laugh as we adorn his favorite decorations. I plastered a smile on my face while the pressure in my chest expanded. That was the hardest part; the pretending. I smiled when we picked out an evergreen from the lot across the street. I took pictures while coercing my ten-year-old to stand by Santa. I dragged myself out of bed and to Christmas parties. When the sign-up sheet for my youngest son’s kindergarten class party landed in my inbox, I volunteered. Every night I read Twas the Night Before Christmas, Polar Express, and Charlie Brown Christmas.
But when I was alone I dropped the act. The rare times I got in my car without kids in tow I punched the audio button as soon as I turned on the engine, turning Christmas music to Linkin Park. The Christmas music I normally looked forward to sounded almost eerie. The words “jolly” and “joy” were like big red fingers pointing at me. The lights only illuminated the gloom. In the shower, when I had the energy to take one, I grieved. Depression had stolen my joy and I was helpless to get it back.
Aside from anxiety, depression’s best friend is guilt. I berated myself for being immersed in darkness during the most wonderful time of the year. I isolated, fearing I’d fail to hide my bleak mood and it might rub off on my friends and family. Smiling was painful. Singing was painful. Visiting and talking and pretending was exhausting. I wanted to snap out of it. I know it doesn’t work that way, but the guilt was oppressive. Not only that, I was missing the season. I was sad about being sad.
Notice I’m saying “was”. This year, I can’t say I’m on top of the world, but I’m miles above where I was last year at this time. Thanks to support, a dedicated psychiatrist and counselor, and maybe some random luck thrown in, I’m in a good place. Some pretty cool things have happened since last year. I’m in the process of working with a publisher toward my book release date. Those dark times propelled me through my novel, which deals with mental health. I’ve watched my kids grow and change. I’ve learned about myself and my relationship dynamics. That’s why I’m embracing Christmas this year; I couldn’t last year. Not didn’t but couldn’t. That’s one massage I want to leave you with. Last year at this time I didn’t think the joy would ever return. I was ready to give up on ever feeling it again. I was wrong. I’m not going to sit here and tell you “things will get better” or “this too shall pass”. I’m not going to patronize you with platitudes, because I don’t know who you are or where you are or what your situation is. All I know is life is not static, at least not forever. It keeps moving, and if you keep moving with it, it has the chance to change. Give yourself the chance. That’s the other thing about depression. It not only helps me with my writing, but it helps me enjoy the times it’s absent. Because of depression, I can appreciate the mundane, I’d venture to say more than the average person.
The other message I want to leave you with might be the one you need to hear the most if you’re in a dark place. It’s okay. It’s okay if you’re depressed this holiday season. It’s okay if you’re grieving. It’s okay if you have the urge to shatter every single Christmas light and the thought of eggnog makes your nauseous. It’s okay if you’re dragging yourself through the motions of shopping, wrapping, cookie exchanging, and ornament hanging. It’s okay if you’re not. It’s okay if your skipping the holidays altogether. Listen, if this is you I truly wish I could come hug you and roundhouse kick your depression, grief, anxiety, etc. in the face. I know it sucks. It sucks worse when the joy you’re surrounded by contradicts your inner climate. It’s not your fault. If I can’t remove your struggles maybe I can help put a dent in your guilt. You’re not alone. I hope you feel safe to reach out for help. I hope the more we talk about this stuff the more people will feel comfortable. That’s why I started writing about my mental health. I’m just one person, but I want to be part of the conversation. If you’re not ready, that’s okay too. But just know that you’re not required to bathe in eggnog and feel all the joys of the season. You’re not alone. I know, I know, that’s a cliché, but based on myself, conversations with friends, and the number of people who approached that resource table, I can promise you it’s true.
Be kind to yourself. Be really gentle. It’s okay if this isn’t the most wonderful time of the year for you. Whatever your feeling inside is legitimate. If all you can do is put one foot in front of the other, if you can’t put one foot in front of the other and all you can do is roll over in bed, that’s enough for now. You’re enough, during this season and always.
National Sucide Prevention Hotline: 1-800-273-8255 or test TALK to 741741
Thursday, April 4, 2019
What Receiving My ADHD Diagnosis In My 30's Did for Me
They called me slow. Funny that I even remember that.
Yep, I’m in my thirties still lamenting on the indignities of grammar school bullying.
Sigh.
Seriously, though, that’s a cut-throat world. I
couldn’t keep up with the cliques, the social cues that hovered just over my
head, the expectations and assignments. I was in a foreign land feigning
fluency in the language. My peers knew it, too.
I was the last to get my milk at lunch and the last to
clean up. I was always behind on assignments or forgot them altogether, to the
point where my teachers required me to have my Pepto-Bismol-pink assignment
notebook signed. I forgot a lot of things, actually. On free dress day, I was
the kid who showed up in uniform. I forgot to get my tests and permission slips
signed. My fifth grade English teacher threatened me with detention if I forgot
to bring my red pen to class one more
time. She said she was doing me a favor and teaching me responsibilities so
that as an adult I wouldn’t forget important things (like always having a red
pen on me?). Spoiler alert: it didn’t work.
Ask anyone in my life if Mrs. M scared me straight in
the fifth grade. Anyone who’s ever asked me (and rightfully so) if I called
that person yet, saw that they called, or if I remember to bring X, you know
what I’m talking about. In my “grown up” life I forget things. My keys aren’t
where I swore I left them. Laundry hovers in various stages of completion, the
dirty sometimes converging with the clean. I start things that I don’t finish.
Making phone calls makes me squirm and I’m ALWAYS late. You might be thinking
every busy, tired, frazzled, mom, insert-situation-here does these things. We
all have our moments and our “stuff”. Nobody has all their shit together off of
Facebook. At the risk of sounding dramatic, though, since kindergarten I’ve noticed
that I struggle with things that most people can accomplish without so much
thought. I’m not late because I don’t respect time and I’m inconsiderate. I
don’t miss calling you back because I don’t care about you.
Detention didn’t teach me to stop forgetting things
any more than those pink walk-of-shame tardy slips taught me to get it together
and be punctual. Why didn’t these punitive measures work? Was I a kid who just
couldn’t learn her lesson?
On the contrary, I was compliant to a fault. I wanted
to do what I was supposed to do. I feared getting in trouble and I wanted to
please people and meet their expectations. Spoiler alert number 2: that hasn’t
changed much either. I didn’t start remembering things or better organizing. It
wasn’t that I didn’t want to do theses things; it was because I couldn’t.
My peers were right; I was “slow”. I froze up timed
tests. I stayed after school to finish my work. I looked around in a panic when
the teacher announced five minutes left to finish the project, observing my
class mates gluing on the last pompom or flipping over worksheets, when I wasn’t
even half way through.
“What were you doing all that time?” the teacher would
ask. I didn’t know. I still don’t
A child knows when they’re different. Instead of
denying that difference, our task is to create a world where differences are recognized
as assets. It’s a tough sell when peers can be so cruel, homing in on any
difference they can sense. Some girls dream of becoming princesses, movie
stars, dancers. I dreamt of becoming “normal”. I tried to learn the language,
but the accent grew thicker as the years passed and the demands increased. I
concluded I was just stupid.
I was wrong. None of the labels I was given by peers
or that I gave myself were accurate: Slow, stupid, inconsiderate, flaky,
absent-minded. It took nearly three and a half decades to discover the correct
label for my penchant for daydreaming, inattention to detail, forgetfulness,
and overwhelm-shut down cycle. Three and a half decades to find a label that
fits, that explains everything. Now I know this label is ADHD (Attention
Deficit Hyperactivity Disorder, inattentive type, previously known as ADD).
ADHD runs in my family, so it’s not like I didn’t know
what it was. I’d even suspected it on and off throughout my adulthood, every
time I reached the next arbitrary age by which I predicted I’d “have it all
together”. But whenever I mentioned it, I’d hear some version of “Oh, you’re
just a busy mom. It’s called pregnancy brain. It’s called ‘mom brain’. You’re
just tired. Cut down on caffeine (wait, what?) You just need to get more
organized and just do it. Oh, everyone thinks they have that nowadays.” In
fact, when my counselor presented the diagnosis, calling me “textbook”, I was
hesitant to accept it. Wasn’t I just making excuses? Not because I in anyway
think ADHD is an excuse (or used as one), but years of internalizing the
message of, “if I would just try harder” …. made me second guess. Was I
claiming a diagnosis that I didn’t “earn”?
That last paragraph might sound really strange. I’m
making an ADHD diagnosis feel like a gift or a badge of honor. Well, it is. Finally,
my counselor got me to recognize and accept that I’ve been struggling with ADHD
for my entire life. The struggles came to my attention when I started
kindergarten and was met simultaneously with new responsibility and exposure to
the development of same-age peers. By first grade I was behind, and they wanted
to send me to a “special school;”. Yes, that’s really what they called it. I
hate even typing it. My parents kept me at my grammar school. I’m very
fortunate for my parents’ endless patience. Even without a diagnosis or much
understanding of special needs or outside support surrounding them, they didn’t
blame me for my difficulties. They saw how hard I tried and encouraged me to do
my best.
Let’s circle back to why I’m referring to my ADHD
diagnosis as a gift and a badge of honor.
When I was diagnosed my first thought was, “So I’m not
just stupid?” The diagnosis, once I “claimed” it, was nothing short of
validating. My peers ran both literal and figurative laps around me (sometimes
armed with pinesol spray and spit balls, but that’s another story for another
day. Or not.) not because they were smarter or more enlightened. Their brains worked
differently than mine. My brain worked differently from theirs. The teachers
were annoyed with me not because I was a pain in the ass kid (although you
might have to confirm that with my brother) but because I couldn’t keep up with
my lessons. I fidgeted with my pencils and erasers, and I was always staring
out the window. The math examples on the board didn’t make sense not because I
wasn’t paying attention, but because I am part of the 20 percent of auditory
learners. I don’t run out of mental energy after social engagements because I’m
antisocial, I don’t forget thank-you cards because, I’m ungrateful or show up
15 minutes late because I’m rude.
I don’t love these things about myself and if they
were easy to change I would, but that’s another way my ADHD diagnosis has freed
me. I can now work on treating my ADHD so it doesn’t interfere so much in my
day to day life. I can use systems to help me focus and keep things straight. I
write and color code everything in a paper calendar because the notifications I
set on my phone fly out of my brain the second my screen dims. I check and
double check appointments. I make definitive plans and try to follow a routine.
Everything must be gotten together the night before. I team up with other
homeschoolers for accountability. These tools and others are just that – tools.
It doesn’t mean I magically have it all together (who does?). I still have ADHD
and I’m still trying. That’s where the badge of honor comes in. All those years
I struggled to get through school (and life) thinking I was just dumb and slow,
I had legitimate difficulties to work with. I was trying plenty hard enough
even when it didn’t seem like it.
My ADHD diagnosis answers my life long question of why
can’t I just do it? It helps me
understand why I would flip through the science project syllabus given at the
start of the school year, get knocked over by a wave of overwhelm, shut down
and shove it into my backpack where I’d try to forget about it until after Christmas
break Inevitably, I’d wind up cramming a semester-long project into a week,
complete with many late, tearful nights. Rinse and repeat year after year. I
turned in a lot of tear stained papers in middle school. Breaking down projects
into more manageable tasks doesn’t happen in my unmedicated brain. I see and
think about EVERYTING I HAVE TO DO, LIKE ALL THE THINGS. Then I don’t know
where to start so I start with reading a book and blocking it out. The cards I
write sit on my kitchen table so long it would just look weird to send it now.
I mean all the steps required to write a card, seal an envelope, address it,
and put it in the mail box.
I asked my therapist why I wasn’t diagnosed if I was
so textbook? Sure, when I was growing up there was less awareness and accurate
testing, but through college and adulthood I questioned. I’ve had psych evals
that showed major depressive disorder and generalized anxiety disorder, but not
ADHD. She postulated that current testing doesn’t necessarily “catch” ADHD as
it presents in adult women, especially without the hyperactive peace. We’ve
learned, to a degree, to compensate. Now I take a low dose stimulant and work
with my therapist on coping skills. Sometimes I wonder which came first: depression
and anxiety or ADHD. I’ll never know, but I do know years of being bullied for something
you can’t control, and thinking you’re stupid and falling behind (no matter how
many times my parents told me otherwise) does things to your psych.
Which brings me to my final point. Parents, teach your
kids about differences and special needs even (especially) if it doesn’t affect
your inner circle. Parents of kids with ADHD, you’re doing fine. It’s not easy,
but the most important thing is your child knowing home is always a safe place where
they’re loved and accepted. Parents of kids with ADHD, you may struggle with whether
to medicate. You know your child best and don’t do anything you’re
uncomfortable with, no matter what anyone says. Maybe for your child it won’t
be called for. But if it is and you do go the medication route, please, please DO
NOT FEEL GUILTY! Don’t worry about what people think. They don’t know your
situation. I know giving your child a controlled substance isn’t easy and it’s not
a decision you’d take lightly. But for some people with ADHD therapies simply
aren’t enough. They NEED medication to level the playing field and give their
brain the stimulation it is biologically unable to produce on its own. And you
know what? That’s okay! If that doesn’t convince you to send your guilt packing,
parents, how about this. I wish I’d
had access to this medication throughout grade school, and not because of my
grades. It would’ve put me on closer to level ground with my peers and maybe
protected some of my confidence. Homework and tests wouldn’t have taken long if
I could focus, limiting anxiety. My parents didn’t have access to this. If you
do and your child needs it and your enduring some trial and error and you’re
doing it, good for you. You are giving your child a precious gift. Pat yourself
on the back. If you’ve chosen not to medicate your child and you’re using other
therapies, good for you. You’re a fierce advocate and your child will know you
always have their back. Pat yourself on yours.
Labels can be harmful if they’re over-identified with,
or worse, incorrect. But the right label offers a map. It offers answers and
validation. So, I truly am sorry when I don’t return your call and you still
haven’t gotten your birthday card, or you’re left to wait for me yet again. I
promise I’m working on these things, but in the meantime please know that it’s
not you. My brain just works a little differently. It’s still my responsibility
to work on these things and it’s not an excuse. But it is an answer to the “why”
that I’ve been asking all my life. I have ADHD.
Tuesday, December 25, 2018
Why You Won't Be Getting a Christmas Card from Me
Two or three years ago we
(and by we I mean me) stopped sending out Christmas cards. You know the fun of
shoving your kids in matching, itchy sweaters, driving around the mall parking
lot, sitting in a crowded portrait studio, having over-worked frazzled college
kids barking at your kids to “smile, dammit!” Okay, they may not actually say
“dammit”, but we’re all thinking it. Then you have to pick out the least cringy
picture, pay half a year’s salary for pictures of your own family, wait a week,
drive back to the mall, keep repeating, “put it on your Christmas list” when
your kids ask for every single item they pass on the way to the portrait
studio, bring the pictures home, stuff them in 75 envelopes, teach your kids a
new word when you get a paper cut, look up your Christmas card address list,
try to remember who the hell all these people are, address, stamp, and send the
envelopes “in time”. Yeah, I know, for a writer my run-on sentences need work,
but that’s how crazy this makes me. My ADHD brain does not do well with
multi-step instructions. It shuts down when the Your pictures are ready for pick up text comes on my phone. That’s
after the ordeal of actually taking the damn pictures.
We don’t have a typical family. Getting everyone out of
the house is next to impossible. Getting everyone out of the house on time and
well dressed? Ha! My kids both have special needs. They, along with me, get
overwhelmed very easily. For my oldest, getting to the mall, dealing with
uncomfortable clothing, bright lights, crowds, and noise, and being forced to
smile through it all is draining. My youngest is on the autism spectrum. Some
days, putting shoes on is an epic battle. To give you an idea, I’ve already
gotten a letter home from school about the number of tardys this year. Winning
over here, people. Once we get to the destination, he wants to touch/lick everything.
He struggles with verbal instructions and receptive language in a perfect
environment. In a crowded, hot, bright studio where a strange lady on the verge
of tears is telling (begging) him to “Sit there, no, there, put your arm around
your brother. No, like this. Don’t touch the prop. Don’t touch the light. You
moved. Smile. Hold still. Smile. Don’t touch the teddy bear I just put next to
you. Smile. Now let’s take 872 more poses,” well, you get the picture. No pun
intended.
“But, Kat, you know you could have a photographer come to
your house and take the pictures? You could do them outside!” I could, even with all the dog hair. The thing is, that wouldn’t eliminate the other 70 steps involved in sending out the damn pictures. Now, I get the fact that for some “normal” individuals, addressing and stamping envelopes and putting them in the mail box is no big deal. Some people love giving and receiving Christmas cards. Great. Don’t let me steal your joy. But we’ve kept up with the sending of the Christmas cards because it’s expected. Yes, I like to have pictures of my family, but at this point I’d rather have the pictures reflect our real life – mismatched socks, messy hair, and no one looking at the camera. Probably a dog photo bombing. So, you won’t be getting a Christmas card from me even though I’m thinking of you, I wish you a Merry Christmas, and I will save the picture you send of your beautiful family. Except for that one person. Just kidding.
When we stopped sending Christmas cards, we violated an expectation,
and we heard about it. The lady my mom worked with thirty years ago wants to
know why she didn’t get a card from us. Was it lost in the mail? Third cousins
twice removed felt slighted. Yes, I’m exaggerating, but only slightly.
You won’t be getting a Christmas card from me and it’s
not because I hate you. It’s actually not you, it’s me. I can’t keep up and
it’s one thing I’ve chosen to let go. If you want pictures of our family, I’ll
be glad to send them via text in all their imperfect glory. If you want to take
pictures of the kids at a holiday get together, by all means. Please send me
copies! But I won’t be sending Christmas cards. Here’s my Christmas greeting:
Merry Christmas to you and your family, and a happy New Year to everyone on my
Christmas card list and anyone reading. Except that one person.
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